Terms of use
This website has been developed by the Into-HLH Registry (hereinafter referred to as the “Registry”). The Registry offers this website, including the information and materials available on this site, subject to the acceptance by you, the user, of these Terms of Use. Please read these Terms of Use carefully before you start to use the website. By accessing or using this website, you acknowledge that you have read, understood and agreed to these Terms of Use. The Registry may modify these Terms of Use from time to time without notice. Your continued usage of hlhregistry.org (the “Site” or “this website”) constitutes your acceptance of any such changes. If you do not agree to these Terms of Use, please refrain from using this website. Your use of this website is also subject to the Privacy Policy and Cookie Policy.
DISCLAIMER
The information and materials on this website are provided for general information only. Any medical information is for informational purposes only and is not a replacement for advice given by a physician or other medical professionals. Advice should be sought from a health care professional upon specific questions regarding a medical condition. While the Registry makes reasonable efforts to ensure that the information and materials on this website are accurate, complete and up to date, it makes no representations or warranties (express or implied) as to the accuracy, reliability, completeness or currency of the information, content, software, tools or links provided on or through the use of the website, or on any website or websites linked to this website. This website and its content are provided "as is". You acknowledge and agree that you assume full responsibility for your use of this website. To the fullest extent permitted by applicable law, the Registry expressly disclaims any liability for any direct, indirect, incidental, consequential or otherwise special damages, losses or injuries resulting from the use, inability to use or reliance on any of such information or materials. The Registry may make changes to the information and materials included on this website at any time, without notice.
HYPERLINKS
This website may contain links to other independent internet sites maintained by third parties over whom the Registry has no control. Any links are provided solely as a service to our visitors and the Registry has no responsibility for the content on such third party websites. Linking and visits to other websites via the Registry’s website is thus completely at your own risk.
COPYRIGHT
All content on this website (including, without limitation, text, photos and graphs) is protected by copyright and is the exclusive property of the Registry or its licensors. Information and materials may only be accessed, copied and downloaded for your own non-commercial use. Any other use, including but not limited to, the reproduction, modification, distribution, transfer or sale of, licensing or publication of any information or materials from this website, its entirety or in part, is expressly prohibited.
TRADEMARKS
All trademarks, logotypes and layout objects on the website are registered or unregistered trademarks and the exclusive property of the Registry, its licensors or other third parties. It is prohibited to use, download, copy or distribute any trademarks, logotypes and layout objects in any form without the owner’s prior written permission.
COOKIES
This website uses cookies to enable the Registry to collect information about the user’s use of the website. Cookies are small pieces of information stored in the memory of the user’s browser. The Registry does not use cookies for any other purposes than those described in the Use of Cookies section. Please read more about the Registry’s use of Cookies on this website in the Cookie Policy.
PRIVACY POLICY
The Registry may, when it is necessary for the purposes of legitimate interest in order to enable users to access the website, collect, use and store different kinds of personally identifiable information such as names, internet protocol (IP) addresses, email addresses and other technology on the devices used to access the website. The Registry will only use the user’s personal data for the purpose it is collected, including inter alia to enable access and use of the website. Please read more about the processing of your personal data in the Privacy Policy.
GOVERNING LAW
These Terms of Use are governed by the internal substantive laws of the State of Ohio without respect to its conflict of laws principles. Jurisdiction of any claims arising under these Terms of Use will lie exclusively with the state or federal courts within Ohio.
CONTACT
You can contact the Registry at the following address: 3333 Burnet Ave, Cincinnati, OH 45229. intohlh@cchmc.org.