Privacy Policy
The Into-HLH Registry (“We”, “Us, or the “Registry”) is strongly committed to protecting the privacy of your personal information. This privacy policy explains the Registry’s data collection and use practices with respect to this website at: (the “Site” or “this website”). Except as specifically provided below, this Privacy Policy references other information collected by the Registry by or through any other means, such as information collected offline. By using the pages in the Site, you agree to the information collection and use practices described in this Privacy Policy. If you do not agree to the terms set forth herein, do not use the Site.
COLLECTION OF PERSONAL INFORMATION
We may ask you on the Site for information that personally identifies you or provides information about yourself (“personal information”) or allows us to contact you to provide a service that you have requested (such as requesting information about our Registry). The personal information we collect may include your name, your address, your telephone number, your email address and other contact information, and other information about services requested through the Site. You are not required to provide the personal information that we have requested, but, if you choose not to do so, in many cases we will not be able to respond to questions you may have.
The Site may also collect information about your visit, such as the name of the Internet service provider and the Internet Protocol (IP) address through which you access the Internet; the date and time you access the Site; the pages that you access while at the Site and the Internet address of the website from which you linked directly to the Site. This information is used, among other reasons, to help improve the Site, analyze use trends, and administer the Site.
USE OF PERSONAL INFORMATION
Except as otherwise required by law, the personal information collected on the Site will be used solely to:
Operate the Site and to provide the service(s) you have requested or authorized,
To provide you with more effective customer service,
To improve the Site and any related Registry products or services, and
To make the Site easier to use by eliminating the need for your repeated entry of the same information. In order to offer you a more consistent experience in your interactions with the Registry, information collected by the Site may be combined with information collected in connection with other Registry services.
From our website, you may use third party social media widgets/tools/buttons. If you use that functionality, your use is subject to the third party’s privacy policy and terms. As with all links to non-Registry websites/content/services, we recommend that you read the privacy policies and terms associated with third party properties carefully.
We may use your personal data collected in the following ways:
Operate the Registry;
Respond to inquiries and provide services;
We may use information we collect directly from you and from outside sources to validate your licensure and eligibility to view such information;
For data analysis, to better understand how our services impact you and those you care for;
To track and respond to concerns;
For fraud prevention and to further develop and improve our services;
To comply with our regulatory monitoring and reporting obligations including those related to adverse events, product complaints and patient safety;
To provide customer service and respond to requests or inquiries;
To communicate with you;
On what basis do we use your personal data
We will keep you informed about Registry activities that we believe may be of interest to you. Processing is based on your consent, and we will rely on your consent. You have the right to withdraw it anytime in the manner indicated when we requested the consent or by emailing intohlh@cchmc.org.
To operate our websites and to create anonymous, aggregated or de-identified data: These processing activities constitute our legitimate interests.
To comply with regulatory monitoring and reporting obligations and to comply with law: Processing is necessary to comply with our legal obligations.
HOW WE SHARE INFORMATION
The Registry may occasionally hire other companies to provide limited services on our behalf, such as website hosting, website design or technical support, mailing/shipping, answering customer questions about products and services, and sending information about our products, special offers, and other services. We will only provide those companies the personal information they need to deliver the service. They are required to maintain the confidentiality of the information and are prohibited from using that information for any other purpose. For example, the Registry may share data:
To enable third parties to provide services to us. Categories of recipients of data would include health care providers, specialty pharmacies, financial investment service providers, insurance providers, pension administrators and other benefits providers, payroll support services, relocation, tax and travel management services, health and safety experts, and child care providers;
To comply with our legal obligations, regulations or contracts, or to respond to a court order, administrative or judicial process, such as a subpoena, government audit or search warrant. Categories of recipients would include counter-parties to contracts, judicial and governmental bodies;
In response to lawful requests by public authorities (such as national security or law enforcement);
To seek legal advice from external lawyers and advice from other professional advisers such as accountants, management consultants, etc.;
As necessary to establish, exercise or defend against potential, threatened or actual litigation (such as adverse parties in litigation);
Where necessary to protect the Registry, your vital interests, such as safety and security, or those of another person; or
In connection with the sale, assignment or other transfer of control of all or part of the Registry (such as a potential purchaser and its legal / professional advisers).
We may aggregate and/or de-identify data about visitors to our Site or other collection activities and use it for any purpose, including product and service development and improvement activities.
CONTROL OF PERSONAL INFORMATION
Except as otherwise described in this Privacy Policy, your personal information will not be shared outside of the Registry without your permission.
For persons over the age of 13, providing information about yourself through the Site is free and completely voluntary. No information should be submitted to or posted to the Site by any person under the age of 13 years. The Registry does not knowingly collect information from children under 13. If you are under 13 years old, you may not attempt to provide your information through the Site. If the Registry determines that contact information has submitted by a person under age 13, such information will be removed. If you are between the ages of 13 and 17, you may use the Site only with your parent or guardian’s consent; the Registry reserves the right to request verification of such parent or guardian’s consent. Personal information of persons between ages 13 and 17 will be collected as described in this Privacy Policy. By submitting your contact information through the Site, you represent that you are age 13 or over.
RETENTION
We will only retain your personal data for as long as necessary to fulfill the purposes for which it was collected, including for the purposes of satisfying legal, accounting, or reporting requirements. In some circumstances we may anonymize your personal data (so that it can no longer be associated with you) in which case we may use this information indefinitely without further notice to you.
SECURITY OF PERSONAL INFORMATION
The Registry is strongly committed to protecting the security of your personal information. When you submit personal information on the Site, the Registry will take all reasonable efforts in order to protect your personal information. The Registry uses certain security technologies and procedures to help protect your personal information from unauthorized access, use, or disclosure once it is received.
COOKIES
Upon your acceptance of cookies from our websites, we may collect information about your visits to the Sites without you actively re-submitting acceptance of cookies. A cookie is a small text file that is placed on your hard disk by a web page server and that helps the Site to recall your specific information on subsequent visits. The use of cookies simplifies the process of delivering relevant content, eases Site navigation, and provides other similar benefits to users of the Sites. When you return to the Sites, the information you previously provided can be retrieved, so you can easily use the Sites’ features.
You have the ability to accept or decline the use of cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. If you choose to decline cookies, you may not be able to fully experience the features of the Site.
YOUR RIGHTS
This website is managed in the State of Ohio, United States of America. We make no representation that material found at the site is appropriate or available for use in other locations. If you access this site from other locations, you are responsible for compliance with local laws
MARKETING COMMUNICATIONS
You may opt out of marketing-related emails by clicking on a link at the bottom of each such email, or by contacting us at the address below. You may continue to receive service-related and other non-marketing emails for which you have not opted out.
INTO-HLH Registry
3333 Burnet Ave, Cincinnati, OH 45229
Email: intohlh@cchmc.org
We will request specific information from you to help us confirm your identity and process your request. Applicable law may require or permit us to decline your request. If we decline your request, we will tell you why, subject to legal restrictions.
CHOICE/OPT-OUT
The Site provides you with the opportunity to choose to receive updates about the Registry and any information we may want you to know about. You may be added to the Registry’s mailing lists and signed up for certain notifications from the Registry when you submit your contact information through the Site. If you would like to be removed from this list and/or opt out of these notifications, please unsubscribe using the instructions in the email or call or write us at the physical address, email address or telephone number listed below. Please allow five (5) business days for processing of your opt-out request.
If you need to correct or update your contact information, or you no longer desire our services, you can do so by contacting us using the contact information set forth below.
LINKS TO OTHER SITES
The Sites may contain links to other sites that are not affiliated with the Registry. Any such link is not, and is not intended to be, an endorsement of such other website or its content and you should review the terms of use and privacy policy of such other website. These websites operate independently of the Registry and the Registry is not responsible for the privacy practices or the content of such websites.
CHANGES TO THIS PRIVACY POLICY
We reserve the right to update this Privacy Policy from time to time and without notice to you. All such updates shall be effective immediately unless otherwise stated. We encourage you to periodically review this Privacy Policy to stay informed about how we are helping to protect the personal information we collect. Your continued use of the Site constitutes your agreement to this Privacy Policy, as amended from time to time.
COORDINATION WITH TERMS AND CONDITIONS
This Privacy Policy is intended solely to clarify the Registry’s practices with respect to personal information and shall not in any way modify or limit the legal effect of the Terms and Conditions to the use of the Site. In the event of any conflict between this Privacy Policy and the Terms and Conditions, the Terms and Conditions shall control. In particular, the Registry will not be liable for any damages or injury (including, without limitation, incidental and consequential damages, personal injury/wrongful death, lost profits, or damages resulting from lost data or business interruption) that result from your use of the Site or your submission of personal information through the Site, even if there is negligence on the part of the Registry or its employees. In addition, you agree to defend, indemnify, and hold the Registry, its officers, directors, employees, agents, licensors, and suppliers, harmless from and against any claims, actions or demands, liabilities and settlements including without limitation, reasonable attorneys’ fees, resulting from, or alleged to result from, your submission of personal information to the Site or your unlawful collection of personal information of others through use of the Site.
GOVERNING LAW AND VENUE
This Privacy Policy is governed by the internal substantive laws of the State of Ohio, without respect to its conflict of laws principles. Jurisdiction of any claims arising under this Privacy Policy will lie exclusively with the state or federal courts in Ohio.
LIMITATIONS OF PRIVACY POLICY
This Privacy Policy explains data collection and use practices related to the Registry’s website and activities specifically covered herein; it may reference other services of the Registry. Please be aware that this Privacy Policy and any choices you make on the Site will not necessarily apply to personal information you may have provided to the Registry in the context of other, separately provided services.
CONTACT INFORMATION
The Registry welcomes your comments regarding this Privacy Policy. If you believe that the Registry has not adhered to this Privacy Policy, please contact us electronically or via postal mail at the following address, and we will use commercially reasonable efforts to promptly determine and remedy the problem, or if you need to contact us for any other reason, you may do so using the following information:
INTO-HLH Registry
Address: 3333 Burnet Ave, Cincinnati, OH 45229
Email: intohlh@cchmc.org
(i.e., 05/17/2022)